Who am I???

Since summer of 2011 my mobility declined to the point that I could not walk more than a few meters and regularly fell over. I am  6ft tall and 18 stone so when I fall over you have to move out the way. Previous to this I was very active and use to walk everywhere. Now I can barely make it out of the house staying upright. I am mid 30s so I thought I had the rest of my life in front of me.

I have a rare Motor Neuron Disease called Primary Lateral Sclerosis. I originally started this blog  as I was fed up being stuck at home ill. Off sick from work and unsure when or even if I would return. No diagnosis and with each test it seemed like I was no nearer an answer. I wrote a load of posts over a year or two. Then as well as being ill my employer attempted to push me out without paying me the ill health pension I was entitled to. Other bad things were also going on. I decided I didn’t want to write about me any more and made all my posts private so no-one could read them.

Now though I am a bit happier over things and although I am still ill and disabled things are a bit better. Retired from work (Its a dream to retire in your 30’s, but probably not the way I did it) I now write what I want and don’t worry if people read it or what they think of it.

I hope through the blog to share my experiences and hear from other people. Please get in touch if you are reading my blog. You can follow me on twitter http://twitter.com/llgoatj where I would love to hear from you too. Please feel free to get in touch and if you want my e-mail address then feel free to ask. If you don’t like my blog or notice any spelling/grammar mistakes then please follow this link by clicking here

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One thought on “Who am I???

  1. Hi. Just thought I’d introduce myself as I’ve been diagnosed with PLS variant MND too. Hope you are doing OK considering. I sometimes jokingly say I’ve won the MND lottery 🙂

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